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Post by natalie on Oct 30, 2015 17:14:41 GMT 1
Hi guys I'm still fighting the cause of GS and BS and others. I just have a little more emotionally on my plate at the moment ( spinal cord injury) abd life in a wheelchair and it's gonna be a long rough old road. I will continue my driven and focused awareness and information and support as always. I'm always on here and I will help anyone I can.
Much love
Xx
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Post by joytotheworld on Nov 9, 2015 0:18:34 GMT 1
Hey Natalie. I know that your determination and drive that you give to this group will also help your recovery. I know you have a lot of work ahead of you, but you will get through it. You have so many friends who wish you well xxx
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Vee
National Support Group Member
Posts: 69 
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Post by Vee on Nov 22, 2015 16:40:17 GMT 1
Oh Natalie, i thought i already replied to this thread. How are things now? How's the spine? I'm so sorry you've had such an awful time recently. But as Joy says keep going, stay motivated, you'll get through and there are many people around if you need any help!  Also, your setting up of this group has helped me increase my knowledge of GS/BS and treatments exponentially. I'm so grateful - so keep in mind all the people you've helped already with awareness raising when you're feeling down. xx |
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Post by natalie on Nov 22, 2015 21:30:55 GMT 1
Well I have cauda equina syndrome which is a spinal cord injury - bowel and bladder don't work and left leg numb and right very weak. I can stagger with a walking frame a few steps and standing is agony. I am being accessed for a wheelchair so will hopefully get mobile with that via support of spinal injuries association.
Waiting for a rehab bed in Sheffield spinal unit which will be a few weeks of care sorting me out via wheelchair skills and bladder self cath.
Saw the surgeon a few days ago and he is worried the disc is still protruding into the simnel cord so might need more surgery soon and this fusion and titanium rods put in.
But I'm still fighting and got a few ideas in place in the new year all being well for awareness and fundraising.
Research project still chugging along nicely and rare disease advocate ( although I cannot attend this quarter ) I will once getting stronger. Xxxxx
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Also, your setting up of this group has helped me increase my knowledge of GS/BS and treatments exponentially. I'm so grateful - so keep in mind all the people you've helped already with awareness raising when you're feeling down. xx